This is a difficult time for you and the Gayle Wells Foundation for Early Onset Alzheimer’s & Care is here to help you through this journey in the best way we can. We have provided some basic information below, but please know that we are here to answer any questions you have.
We can also help in the following ways:
- Create personalized information cards for you to share with your friends that explain what is happening with your loved one and how they can help
- Create personalized information to share with your teachers, school counselors, and classmates explaining what early onset Alzheimer’s disease is and how they can help
- Assist with creating fundraising events
- Answer questions about things that are changing with your loved one
We know that this is especially difficult if it is your mom or dad that has been diagnosed with this disease. One of the most important things to know is that every feeling and every emotion you have is normal and you should not feel bad about it. Don’t be afraid to ask questions about anything. That’s what we are here for.
Having feelings of sadness, being confused and afraid of what is happening is completely normal. You may also be scared that you could catch this disease, but please know that early onset Alzheimer’s disease is not contagious.
There are a lot of changes happening throughout the disease, and having someone that you can talk to about your feelings will help you so much. That is why we recommend that you tell your friends, your teachers, school counselors, and others that you are close to, about this disease. These people will be your circle of support.
Your entire world has changed as you are an important part of caring for your loved one with early onset Alzheimer’s disease. This is especially difficult if it is your mom or dad that has the disease. You may find that you are doing more things around the house and that you are actually helping to take care of them. This can be a really hard thing to have to do
Telling Your Friends
One of the best things you can do is to tell your friends about what is happening to your loved one. You may not want to invite your friends over because you feel embarrassed by how your loved one is acting. Tell your friends what early onset Alzheimer’s disease is. Tell them why your loved one acting a certain way. Let your friends know that your loved one is not doing this on purpose – they can’t help it. A lot of times when your friends know more about the disease, they understand better.
Telling Your Teachers & School Counselor
There may be days when you can’t go to school because you are needed to help out at home. There may be times when you feel sick or you are depressed. It may be really hard to study and get your homework done because you are helping to take care of your loved one. As hard as it may be to talk with your teachers and school counselor, it is important for them to know what is happening in your family. Have a family member with you as you explain the situation to them. Let them know what early onset Alzheimer’s is or let us send you information that you can share with them.